In a small Detroit apartment, Sam Barash, 32, lives with and cares for his year-old, soon-to-be 21, sister, Angela Barash, who is living with myotonic muscular dystrophy and myasthenia gravis. The excitement that surrounds MDA Summer Camp is evident from the energy and smiling faces of the campers. For year-old Axel Vazquez-Solis of Pennsylvania, who was diagnosed with Ullrich congenital muscular dystrophy in , that excitement lasted all week long as he enjoyed the many pleasures of camp life — swimming, singing, meeting new people, having a friendly food fight and even taking motorcycle sidecar rides. Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming. Imagine being in a strange city.
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She considered becoming a doctor or a lawyer, as well as a cook, even though she admits to being terrible at cooking. Clinical trials are research studies conducted to determine whether a medical strategy, treatment or device is safe and effective for use in humans. They can test medical products including drugs and devices, help discover more information about a disease, or evaluate procedures or behavioral changes such as diet or exercise. How will this impact me if I do not participate?
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High-five to Tyree for saving her. These young girls above wanted pictures taken with them, so of COURSE we obliged. And then the beautiful ladies below were next in line.